The Salty Life Foundation is a non-profit, 501(c)(3) organization, run by volunteers who create and produce The Salty Life: A Cystic Fibrosis Magazine.
My name is Meranda and I am the founder and president of The Salty Life Foundation. After serving other CF nonprofits for several years I realized new ways to reach the CF community without excluding a specific demographic. I wanted to start a nonprofit with board members who are all affected by CF in some way and work together to make a positive impact on the CF community. We are inclusive of children, pre-teens and teenagers, adults, parents of people with CF and family members. The Salty Life: A Cystic Fibrosis magazine is unique in featuring people affected by CF in all walks of life. The minority CF population (African American, Latino, bi-racial and multi-racial backgrounds etc.) is currently under represented within the CF community. We have personally reached out to minorities with CF to learn more about their journey to diagnosis with CF, and plan to feature their stories in a future magazine publication and our blog. Raising awareness about CF in minority populations will help increase awareness, and potentially lead to new diagnoses of CF for certain groups. Additionally, we want to put a spotlight on those with CF who have navigated the challenging waters of CF to accomplish personal goals. For example, showing people with CF from all stages of health (mild to severe) who are working toward goals in non-traditional ways (i.e. choosing to pursue a college degree online instead of traditional ground campus classes). This will help show pre-teens and teenagers with CF there are options in pursuing higher education in addition to learning how to navigate life complexities with a chronic illness regardless of severity of disease. Learning options and how to adequately work around illness to achieve personal goals is essential for those living with CF. We want to inspire hope for those affected by CF but ensure to show the real and raw struggles of our community knowing most with CF will relate. We want to shine a spotlight on important topics to our community, including those seemingly small. Sharing personal stories from people in our community will help instill hope, encouragement and inspiration to those who need it.